Rare Disease Foundation

Site: British Columbia

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Names
Alternate Name Family Counselling Assistance Program ; Fondation des Maladies Rares
Location & Accessibility
Located In Community British Columbia
Address & Map
4500 Oak St, Rm C234
Vancouver, BC V6H 3N1
 
View Google Map
Intersection Oak St and 29th Ave
Physical Access Not Applicable
Description and Services
Description (Service) Social support, advocacy and funding of treatment-focused research * website offers an online community, a list of resources, a forum, and a video library of meetings * local face-to-face meetings of stakeholder parents, patients and caregivers in Victoria, Vancouver, Whitehorse, Calgary, Edmonton, Regina, Winnipeg, Toronto, Cobourg, Ottawa and St. John's (see separate listing for details). 
 
Family Counselling Assistance Program: to secure local short-term counselling for families trying to cope with a rare diagnosis (or non-diagnosis)
Hours Mon-Fri 10 am-10 pm (Eastern Time)
Areas Served Canada
Eligibility Families and patients coping with a rare disease
Application Visit the website for more information * Family Counselling Assistance Program: send an email to request the form
Languages English ; French
Fees None
Service Categories Health Related Advocacy Groups ~ Orphan Diseases ; Internet Information Resources ~ Orphan Diseases ; Mental Health Expense Assistance ~ Orphan Diseases
Waiting List No
Contact Information
Office Phone Executive Director 604-318-0237 ; French language inquiries 438-395-8668
Toll Free Phone 1-866-348-6677
E-Mail families@rarediseasefoundation.org
Website www.rarediseasefoundation.org/
Social Media Facebook
Primary Contact David Cox, Executive Director; Email: dcox@rarediseasefoundation.org
Alternate Contact Sylvia Eng, Fund Development and Community Engagement Coordinator; Phone: 647-830-7632; Email: seng@rarediseasefoundation.org
Primary Executive David Cox, Executive Director
Alternate Executive Alyson Doughty; Phone: 438-395-8668; Email: adoughty@rarediseasefoundation.org
Other Details
Funding Donations - Charitable Registration Number: 819326224RR0001 ; Private - donors
Resources Website

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